RESOURCES TOOLKIT
FREE Resources in Toolkit include:
Information on how to better treat lupus:
- Lupus: The Essential Clinician’s Guide from The Oxford American Rheumatology Library.
- Lupus Interactive Educational Tool: This self-directed learning DVD, created under the guidance of an advisory board of lupus experts, is focused on understanding the pathophysiology of the disease. Underwritten by Genentech and Biogen Idec, the tool was developed by Aegis Creative and includes no marketing.
Information on health disparities and social support:
- Lupus Initiative Case Statement which examines the importance of lupus in discussions of health disparities in the US
- Executive Summary of the National Stakeholder Strategy for Achieving Health Equity
- Family, Fatigue, & Heart Health: Research that explores several factors in the health and well-being of patients with lupus
- A copy of Lupus Now, the quarterly magazine published by the Lupus Foundation of America.
Information for use with patients and to help patients help themselves:
- Patient DVD: “Lupus - What you need to know”
The Lupus Initiative has partnered with Emory University School of Medicine to create this DVD resource for patients with lupus and those who wish to better understand and support people living with this persistent illness. The DVD covers topics related to the newly diagnosed patient and those managing life with chronic disease.The DVD was recorded in English with Spanish subtitles and providers can use this DVD in their waiting rooms or distribute copies to patients and their families/support networks to help them better understand a lupus diagnosis. Individual segments, as well as the entire DVD will be available for online viewing in 2012.
Ask Me Three – An Illustrated Story on Adherence
“Ask Me Three” is an illustrated story, in a comic book format, that highlights the importance of following your doctor’s instructions and the value of good communication between patient and provider. The adherence graphic is available as part of the Toolkit and as a stand-alone resource on our Web site. Click to view and download a copy. Copies are currently available in English only but a Spanish-language version will soon be available online as a PDF.
Symptom Tracker – Tool patients can use to monitor the onset and duration of symptoms between visits in order to provide comprehensive information during examination. This tool is available in English only.



